The Long Story: Part 4: Visualization
If you haven't already, please first read the introduction,
Strength comes from refusing to be shamed.
Strength comes from refusing to be shamed.
There is a theme, for me, that runs through all the incidents I've written about in the previous entries. I mention this briefly in the first entry, Petrification, about how my experiences at six seemed to represent how I reacted to the rape at sixteen and traumatic situations beyond that. Not fight or flight, but freezing. Mentally becoming invisible. Hoping it goes away on its own. Absorbing it all silently. That bunk bed becomes representative of all of it, the reactions and the emotions and the fear. The petrification.
Finding my own place, working, and being independent was invigorating once I graduated from college. I didn't miss all the hanging out and the parties. It freed me in many ways. I felt stronger. A cycle was broken. Simplified, a cycle of "slipping", petrification, shame, drinking, and slipping again that just fed on itself. I took this to mean that I may have "gotten over it".
Here's the thing.
The cycle wasn't broken because I learned to "deal" or because I "healed". It was just my environment that changed. Like my senior year in high school, I had no interest in social situations, alcohol, or drugs. In high school this meant I was numb. After college I didn't have the luxury of numbing out and going through the motions. I had to find a place to live, a job, and create a life.
The shame was certainly still there. Somewhere deep down I was still suffering. It had to be expressed somehow, and I realize that in general I've dealt by taking it out on myself. The old ways of coping were no longer a part of my new life, though. They now represented being out of control, and I gladly left them behind.
I don't know how many times I've felt like if I were to release all this outwardly, to stop taking it all on myself and relieve the pressure, I'd somehow destroy the world. My world. The world where at least I functioned and did my best not to hurt others. It felt like if I were to express outwardly and not inwardly, it would come out in this uncontrollable rush that would truly destroy me and people around me. And it would be all my fault. My fault for not keeping it under control.
So, how did I cope?
I don't know how it started. It was a minor thing I did unconsciously that slowly built up over the years. The worse it got, the better my ability to deny it became. By the time it got so bad that I realized what I was doing, it had been going on for about a decade. I was expressing it, letting it out, but not in a healing way. Quite the opposite. I turned my outward expression immediately back upon myself, taking what was inside and displaying it on the outside. Making the emotional wounds real, physical. It became a compulsion.
This may be as far as you need to read. It continues, though, because you just never know who else deals with this and thinks they are the only one. I know I did for a long time.
7 years ago, I got out and wrapped the towel around me as I stepped out of the shower, my arms crossed along the top. I was not mentally prepared when I caught myself in the mirror. I saw the whole me reflected back, all of it. And what I saw, really saw for the first time, were red sores and scabs, all over my face and arms. There was not an area of skin in my reflection that wasn't bombarded. I was mortified.I really can't even bring myself to name it, and the idea of defining the condition kicks up the anxiety to a level I'm not willing to deal with. Since anxiety is what freaking contributes to this very behavior, I leave you with these links instead.
Until this point, I only allowed myself to see small parts of myself. I was very good at denying the reality of what I was unconsciously doing. I could slap on the concealer and foundation and powder, focusing on one small area at a time, put on long sleeves and pants in 100 degree weather, and step out into the world. My masterful self-denial was the only way I could do it. The avoidance allowed me to convince myself that I was presentable, that no one noticed, that it didn't look that bad, all so that I could bring myself to walk out that door.
That moment in front of the mirror shattered the denial. The realization didn't bring it to a stop, it just made me feel more ashamed. It was a deeply ingrained compulsion by this point, and now I was just more aware of it as I continued to do it. Aware of how often I did it, how I didn't feel pain but relief, being disgusted with myself, watching it get worse.[1] I only left the house, showered, brushed my teeth and changed my clothes to go to work. The rest of the time I hid. I did not run errands. I did not walk down the driveway to get the mail or take out the trash. I panicked and hid when the doorbell rang. I avoided social situations and family get-togethers because of the anxiety brought on by the very thought of going. I became depressed, tired, apathetic, unmotivated, a prisoner in my home. I slept more and more in what seemed to be an effort to escape from myself, my family, the world.
I eventually gathered up the courage to see my primary care physician, the first outward admission of what I did, which was damned hard to do. He gave me a depression quiz, graded it, declared me depressed, said it was like OCD, and prescribed an antidepressant, Paxil, 20 mg. I felt lost and somehow cheated, but it was a lot for me to just go in there in the first place.
The Paxil made a dent. I felt less depressed, and as it is with these things, don't realize how depressed I was until I began to feel it lift. My compulsion was still going strong. My dose was increased to 40 mg. I started trying to learn more on the internet, but 7 years ago there was pretty much squat. I began to feel more anxious and edgy, and attributed it to frustration over lack of information.
That's not what it was.
When my dose was increased to 60 mg, the compulsion was reduced so much that I cried with relief. Then, for the first time in my life I became manic. The next 5 years were the worst in my life, where I took up to 6 meds at once, never feeling like myself at best, living a near-psychotic hell in my own mind at worst. Paxil, Neurontin, Zyprexa, Klonopin, Geodon, Celexa, Wellbutrin, Topamax, Lithium. The true relief from the compulsion lasted only as long as the initial mania. In the end I took charge, and declared, based on 5 years of hit-and-miss experimentation and reading, that what I needed to do was go off the meds that were causing all this in the first place. No anti-depressants means no bipolar and thus no stabilizers and sleep aids, either. This was a year and a half ago.
The fact that I still deal with the compulsion, although not nearly as bad as it was back then, is a small price to pay for having my mind back.
The scars take on a whole new poetic meaning. The shame is no longer hidden, it's exposed. It's permanent. They become the shame. Always separating you, always making you hide a little bit, instinctively pulling down your sleeve when you notice someone looking at your arm, lying about the "bug bites" and how you really don't want to take a dip in the pool. No matter how much progress you make healing the inner self, the outer evidence never completely heals. It becomes a shield. The body is imperfect, scarred, even morbid. No longer can you fool yourself into thinking that desire for your body has anything to do with desire for you. If there's desire, it cannot possibly be for your body, so it must be for you. This irony doesn't escape me one bit.
It took me days to write this. Feeling quite a bit of anxiety over writing about my anxiety! Days where I had to look up old message board postings to get the timeline straight, where I was reminded how one Doc who frequented a board would blow me off when I said the SSRI was helping the compulsion, and he'd just go on about his statistics and his damned book. Funny how today he gives SSRIs some credence. Being reminded how I went through some of this same crap with my psychiatrist. Feeling desperate and dependent and not always being listened to. Feeling your crumbling, real-life sanity is at the mercy of the average, negligible effectiveness of hit-and-miss drugs.Taking five years to get up the nerve to say hell with it all, all your damn drugs, I want my life back, and you're not part of it. It's not at all unlike taking charge of other things in life.
And with those that final rant I end the series, and hope to find lots of mundane crap to post so that this moves off the front page. Thank you for your support and kind words, which helped a lot toward me being able to make this final entry.
[1] Hidden way down here at the bottom of the post is what "worse" is, a photo of my legs from 6 years ago (the internet is forever!) So, you know, you've been warned if you really need to look. Although I didn't submit it to trigger others, it could be triggering.
last updated 4/09/06



8 comments:
Manxome, thanks so much for writing this, and the whole series.
I'm sorry you got such a lame response when you tried to get help. But you were taking action, trying to improve things. I've been on a lot of the same meds you were on-and for a completely different reason. Talk about ham-handed in their approach.
But I want this to be about you-your courage, your strength, and your persistence. And all of those qualities apply to your decision to share your story. Who knows how many people you'll help?
(((big hugs)))
i really appreciate you sharing your story as well. it took a lot of courage and strength to expose yourself in this way but i hope the people that you've touched and helped by sharing make it easier for you.
thank you.
xoxo, jared
Wow, you have made me think about a lot of things. First of all - I know exactly what you mean about wanting to write a whole bunch of posts so as to move a particular one out of view! I find myself doing that as well.
Also - you reminded me about some things I used to do, and ways that I have hurt myself physically as a coping mechanism. I need to do some reflecting on those things...
Thank you for sharing. Your 4 posts can and will benefit so many. You've inspired me to revisit and add to my story on my page...
Thanks so much for writing this. I'm sure your courage will inspire many others.
Wow, your story sounds so eerily familiar... I have gotten really tired of the response to women's every emotional woe being "take Paxil because YOU are chemically messed up." It seems to me to be a denial of the prevalence of abuse of girls and women, and ignorance of the effects of that abuse. A pill won't make it all better.
I still struggle not to slip back into various forms of SI. It is very hard. And so many people I see online mercilessly mock women who deliberately hurt themselves. It is very difficult to talk about.
You are very brave!
Manxome, thank you for this whole series. I admire your courage, your honesty, and your strength.
Thank you so much for writing this. I'm afraid I don't have much else to say or offer here, but really, this is brave. I hope it's helped you.
Wow.
Thank you so much, every one of you, for your heartwarming responses. I'm a bit speechless, in a good way. That will explain why the rest of this reply will probably sound a bit detached. I just can't put the rest into words!
Many mentioned the sentiment "who knows how many you have helped", and I have to say, that's a huge motivator with this. The thing is, I don't really need to know specifically if that has happened, to what extent, and what the numbers are. It's "out there" and that means someone could find it. I'm not knocking the sentiment, it just made me think how all I need to know is that it could make a difference, not that it has.
SE, it's true that those five years is a long, frustrating story. I only touched upon it here because it's eventually all part of the experience. Actually, the reason I was on all those meds for 5 years was for Bipolar I. That's the diagnosis I received from a psychiatrist when the Paxil made me manic at the highest dose. The OCD-type stuff just became a non-issue when that happened, for reasons I'm sure you can understand.
Witchy, I think I will never get over when someone says I've written something beautifully! I think of myself as an image person, not a word person. All I can think to do when I write is just let it ramble like a conversation and not fight its rambliness, because images can't express everything. Now, to amend what I said above about helping: that doesn't mean that when someone is more specific about it like you were, that it doesn't just blow me away. :)
Ms. Jared, "Exposed" is the perfect word. You hit the nail on the head!
Lyons, here's where I most feel at a loss for words, and I can't really explain why. I think part of it is that you feel like a good friend.
BBB, thank you.
Raven's, meds are such a touchy area for me. With that, SI, and mental health issues in general, the most important thing I've learned is that you have to be vigilant about educating yourself. Read, connect with people, keep up with valid studies, and read more. When I first began trying to figure out my SI thing on the internet years ago, I came across a mailing list (Secret Shame - BUS) that helped a lot in the beginning as far as identifying. There was also a lot of good information on the site at the time. I will say, though, that I had to leave the list at a certain point because there was a lot of other stuff going on psychologically in the group, and that made it hard to progress further on an individual level. I think that's a real danger which is not addressed much. Yes, the hardest part for me to own up to was the part I saved for last because of the SI and because it's not past. When you say it's very difficult to talk about, you are only at the tip of the iceberg! You know that, and I know that not just because of me, but because of all those people on the list I met and the books I read on the subject. It's complex and so full of shame and lack of understanding that... yeah.
Socks, thank you. I'm trying to catch up on posts after a week's vacation, I swear! :)
Anonymous, I know the feeling of not having much to say. It's fine. Thank you for just letting me know you were here. That's the most important part.
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